Monday 30 June 2014

Medication Minefield

Sunday was an early start for Boy Wonder as he had a rehearsal for the Jungle Book performance that he is in, in a couple of weeks. He coped with this well to say that it was a Sunday and not his usual day. 

In the afternoon he went on a long bike ride with Superman and the boy next door. They went for quite a few miles and came back looking shattered! Afterwards we met Boy Genius and family for tea at a nice quiet pub with a large garden where the kids could run around happily. It made a nice change as the weather was now quite warm too.

Today brought a hospital appointment to 'investigate' Boy Wonder's incontinence. In particular the bed time wetting and the urgency to urinate resulting in accidents during the day. It was an odd appointment as they were only interested in the incontinence and although they listened to the other matters made it very clear that their clinic dealt with the bladder. However this was followed up with a ' if the medication doesn't work then we will put it down to an autism thing.' Great, thanks. 

So we came out of the appointment with two more prescription medications, one to relax the bladder to make it less irritable and one to stop the kidneys functioning in day time mode at night. It seemed to be dished out in a rather complacent manner which bothered me hugely. Although I don't doubt that he needs help as the problem is becoming difficult for him now that he is getting older, it just seems that medication is being thrown at him from all directions.  This isn't in any way meant to be disrespectful of the medics that work really hard to try and keep him stabilised, however. 

I dropped Boy Wonder off at school and went to chew the ear off of his usual Pharmacist. He assured me that there shouldn't be any contraindications with the medication that Boy Wonder is on. He also reassured me that I wasn't being paranoid as one of the medications prescribed is specialist and not licensed for children. It's a flipping minefield! We agreed that he should try it up until the two week review and go from there. 

This evening started fairly calmly after a session of art therapy and football. However it all went a bit crazy when Boy Wonder's cat caught a  baby bird. It was still alive so we googled what to do with it and as a result put it in a makeshift nest back up in the tree. Boy Wonder became very loud and stressy so we came inside and attempted to settle him down.

He took his medication and after a battle of wills, finally went to bed to read. 

1 comment:

  1. I agree with you about the way some medication is just handed out a little too freely. The comment about 'if it doesn't work' angers me though. That's a cop out if ever I heard one. X

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