Jinxed!

Clearly I spoke too soon as the two fairly good nights sleep were merely a taste of an idilic life! Boy Wonder managed a full few hours on Wednesday night and no more than two on Thursday night. He spent most of this night running up and down stairs, shouting out and being generally unsettled. The only thought to keep us sane was that he would be so worn out that he would sleep last night, but no. We are going for a hat trick it seems! In the meantime we look like zombies and Cat Girl is starting to look tired too, especially as Thursday night was a rather loud night.

Thursday was fairly uneventful although Boy Wonder managed to get a gold award for being a 'mini teacher.' There were an awful lot of supply teachers around that day so maybe his maths brain was required?! Well done Boy Wonder.

Yesterday I stayed for assembly as BoyWonder was showing his football trophies with his team. He was very proud and gave a very detailed description of events and their combined footballing skill. I later picked him up for his EEG appointment which soaked up the rest of the day.

The EEG was at the City hospital and on a Friday afternoon this made for horrendous traffic and parking conditions. As a result we were a little late but luckily they still saw us. We went into the room for Boy Wonder to be connected up to the machine. They started by reassuring him about what would happen to which he responded by telling them that he had been before and that he knew all about it, including the amount of wires (23) that would be placed on his head. He is probably one of few children that have an EEG file and is now moving into double figures with the amount of EEGs they he has had but with no outcome. We spoke about the more obvious aggression before an episode and the sleepiness afterwards and that Boy Wonder is now recalling some of them.   They did the usual light test and we watched Tom & Jerry on DVD and then it was done. We will get the results next Thursday when Boy Wonder sees his Consultant.

We left the hustle and bustle of  the City and headed for home via Pizza Hut for a late lunch. He barely ate anything at first so I had to insist and he eventually ate half of a child's pizza.

On the way home, the hospital rang to confirm Boy Wonder's appointment for next Thursday at 9am. That will be a very early start! The appointment had been brought forward, not only for the EEG results but because of the worsening difficulties with eating and possible weight loss, excessive chewing and swallowing of inedible objects, tummy aches, headaches and incontinence . These are not new symptoms but are getting worse and there is a concern that the constant anxiety and over stimulation of the senses is starting to have a physical impact on him. We had this described to us like  being on a theme park ride or watching a scary film. That peak of adrenalin that we feel at that moment is how Boy Wonder feels most of the time, hence why he is always over aroused and responds to the slightest impact on his senses.

In the evening, Cat Girl scampered up to her room to make Superman's Fathers Day card and we spoke about her day. She said that she got all of her spellings right. Well done Cat Girl. She then settled down with her laptop to play on Cbeebies with her cat.

Boy Wonder was outside playing and this was going okay until he grabbed the girl he was playing with and threw her to the floor. It was a huge over reaction to a tackle in football and on explaining this to him and asking him to apologise, it became evident that he was not in control. We said goodnight to his friends and he came inside to settle down. After a few exercises he watched football in his room.