Sunday, 17 November 2013

Soft Play Prisoners!

Boy Wonder didn't wake until 10.15am which allowed him to catch up on some much needed sleep. He got up, had a shower and got ready for dance. He was very high on waking and difficult to engage but eventually we got there.

Whilst at dance, Cat Girl and I did the food shopping before collecting Boy Wonder to come home. We had some lunch and then Super Gran took them to a soft play so I could write an AGM report needed for next week. I managed to get half of it done so was quite impressed!

When they returned from soft play, Super Gran reported that Boy Wonder had been involved in a bit of a situation with a couple of girls. He had apparently threatened to kick them in the head and they had told their mum. However Boy Wonder said sorry when asked so it ended swiftly. Call me a synic  but I wasn't totally convinced that, that was the whole story and neither was Super Gran really. I spoke with Boy Wonder a bit later about it and he told me that he had trapped the girl in the big balls ( big inflatable yoga balls) as she was in his space, so he took her prisoner. He did this to the other girl too. They got upset so he let them go and one girl kicked him in the leg. He responded by saying that he would kick then in the head so they ran off and told their mum. I asked Boy Wonder if he knew what he did was wrong and he said yes because they got upset. I asked him if he knew it was wrong before he did it and he said no, he was just getting them out of his way. I suppose we should be grateful that he responded to their upset at least!

On return home Boy Wonder played on Mine Craft for a while, had tea and then we went off to a family quiz night at the new big kids school. They have built in an Autism Resource Centre here so I was very keen to have a look. Boy Wonder seemed to be struggling more and more to process as the day went on, repeatedly asking questions and clarifying things.

We picked up Super Gran and arrived at the school for around 7pm, equipped with electronic games for Boy Wonder, Cat Girl and their friends also brought theirs. We asked to look at the autism resource centre (ARC) and the Head took us round. Boy Wonder liked the work stations particularly. It was a good space but out of a school of potentially 800 children there are 15 spaces for children with autistic spectrum conditions, a little optimistic, however they do have 'dip in, dip out' options and additional spaces for special needs in general so it may work. We then joined the tour of the school and Boy Wonder became quickly fasinated by the theatre and moveable stage and asked a lot of questions.  He also couldn't work out why there was no play equipment!

We started the quiz which was in several different parts and lasted for nearly three hours. The children did well to behave for that long and did partake in the student 's quiz and came second! We came about tenth but enjoyed it so we were happy! Boy Wonder became unsettled at times bit the quiz master seemed to unwittingly distract him by asking him to go little jobs for him which helped.

We arrived home at 11.30pm with the intention of going straight to bed. Super Man, who had been out for the day with friends was home before us and was watching Pirates of  The Carribean so Boy Wonder chose to watch this with him. Boy Wonder kept asking Super Man why he was speaking funny? Super Man was a little tipsy!

Everyone finally settled just after midnight and is still sleeping now. I think I will take the opportunity to continue with my AGM report !!

Friday, 15 November 2013

Pants ?!

It was after midnight when Boy Wonder settled last night. Before going to sleep he kindly set his alarm for 6am for it to sing One Direction at full pelt. Well it woke us but not Boy Wonder who slept through it somehow!

It was Pyjama day at school today for Children in Need. Not much could go wrong there then? Well, to start with it took me at least half an hour to convince Boy Wonder that pants WERE required. Yes I do know that he wouldn't usually wear pants with P.Js but he needs to wear them for school. I am still not convinced that he fully understood but he did accept my instruction eventually! We then had to put a stitch or several on the waistband as the trousers were clearly not going to stay up on his skinny little frame.   Eventually we left for school!

They both had a good day as it was an activity day so no pressure for Boy Wonder. He was nicely content in his fleece pj's which possibly contributed to his good day. We arranged a meeting with school to discuss the statement refusal, for in a week's time. We should have a few more things to add to the mix then too like O.T assessments and art therapy sessions.

He watched Children in Need this evening and got upset when a boy had a skiing accident but enjoyed the bulk of it.  Boy Wonder is still awake as I write this blog but seems settled.

Thursday, 14 November 2013

A day of reflection ....

It's been a tough couple of months resulting in a major blow out on Tuesday that we should have seen coming and quite honestly rendered us helpless and hopeless for a short time. I think sometimes we get so used to managing complex needs that we miss the little triggers that tell us that the volcano is going to erupt rather than just smoulder. 

I spent a lot of time talking to people yesterday and managed to progress with a much needed medication review ( I am not a great believer in medication but neither can I sit back and watch my child dice with death.) Boy Wonder has such a fabulous medical team that we would be lost without them. To speak to someone on the phone and rant on about odd behaviour presentation and for them to say 'well he does this because....' Is a tremendous relief. It is very clear that the last couple of months have been a result of uncontrolled ADHD symptoms. This is one pig of a condition with such a huge attachment of misunderstanding thrown in. 

Boy Wonder's dance teacher hit the nail on the head today as she said to me that he has been very hyper this week but engaging with chit chat. 'However as soon as I instruct him to do something it's like I loose him as he stares into space.' I explained that it is because he is struggling to process and will zone out to try and make sense of the instruction. 

His piano tutor who we always joke is as hyper as Boy Wonder spoke to me about Tuesday and I apologised for missing his lesson. He reassured me not to worry and that if it ever happens again not to concerned about the lesson. I thanked him for his understanding. Why do these guys just get it when with others it's like smashing your head against a brick wall? Boy Wonder certainly has some good people on his side. 

Over the past couple of days we have been talking more and more to Cat Girl about Boy Wonder's condition and reading the 'My Bother is Different' book from the National Autistic Society. For a four year old she is very insightful and despite being at the brunt of some of Boy Wonder's anxiety she tries so hard to help him. I suppose this is one of the hardest things about having a child with complex needs, ensuring that the sibling also gets the right support. A very fine juggling act indeed!

I spoke with Boy Wonder's school today about the medication increase and asked the supply teacher if she had been updated on the past week? She hadn't so I did the honours in brief and in return she wrote a descriptive account of her morning with Boy Wonder. He is certainly becoming a bit of a handful! 

This evening we went to Jiu Jitsu after dance and forgot Boy Wonder's Gi (kit). The Sensi was very good and sorted him out with a spare. He also refrained from the usual lecture to the child about it being their responsibility ..... I think he took one look at us and taking into consideration the matter on Tuesday thought that we had had enough and needed a break!  Seriously though, this is another shining example of the fabulous support Boy Wonder has. 

Boy Wonder has just returned from Jiu Jitsu and is fairly settled, he looks exhausted !! ( Join the club !) 

Wednesday, 13 November 2013

Therapists!!

Boy Wonder went to sleep very late last night and as a consequence needed to be woken up this morning. He was very high on waking and difficult to kept on task. He wasn't aware of the impact of yesterday and Car Girl being unsettled around him this morning.

We got to school and I spoke with his teacher regarding the escalation of the incident last night. I explained that I would be talking to his Doctors today for advice and she agreed to use Boy Wonder's morning time to talk through what happened yesterday. Boy Wonder's needs and management of incidents would also be discussed in the staff meeting this evening.

I went off to work and made a few phone calls throughout the day and received some very welcomed support. Boy Wonder's ADHD consultant stated that the description of the incident sounded very much like uncontrolled ADHD symptoms and we spoke about other matters that tied in with this. For example the increase in impulsivity and hyperactivity over the past few weeks. She requested that his ADHD medication is increased immediately and reviewed in a week's time. Superman collected the prescription in the afternoon to start tomorrow.

Boy Wonder's Psychiatrist was unable to bring the appointment forward from December but offered a duty worker if required or if the situation escalates further. I explained the input from his paediatrician and stated that we would see  how things go and call if we needed to.

The art therapist rang this afternoon and wasn't able to change the appointment slot as previously requested by Boy Wonder. We booked a review for next week and discussed briefly the recent difficulties. He was quite surprised but more surprises when I explained the very obvious reduction in anxiety levels after a session of art therapy. He agreed there and then that we would continue if the outcome was so positive.

Finally I spoke with the O.T who sounds fabulous. They are hoping to start work at the end of the month.  And then the day went pear shaped......

I got stuck at work due to an urgent meeting so Superman had to finish early and do the school pick up and clubs. He seemed like he got it all done with little fuss.

Later this evening Boy Wonder spent  hours studying his Minecraft book and although he was thrashing about a bit, he seemed okay.

Tuesday, 12 November 2013

A Meltdown and Some!

The usual madness to start the day with the added bonus of a Boy Wonder panicking over his kitten going out for the day ( Although they have been let out  for the last couple of days and he hasn't been overly concerned.) a classic example of processing delay I feel!

We arrived at school and realised that it was the book fayre. I explained to Boy Wonder that we could put the books to one side and I would pay for them after school or in the morning due to them being at after school club . Boy Wonder appeared to accept this and picked a book on Mine Craft and Cat Girl picked a book about 'pink.' We put them to one side to pick up later.

I picked them up after school clubs after a day of emails and phone calls about the SEN refusal and meetings etc. we think we have found a suitable O.T who specialises in autism and sensory integration. She is going to call us to arrange a meeting soon.

I arrived at the school and picked Cat Girl up first and then Boy Wonder. As Boy Wonder came out of the classroom he got called back and in front of parents and children and his own teacher got told off for kicking a child. He did the bare minimum to get away from her and ran into the next corridor and curled up on a chair. I explained to his teacher that what had just happened wasn't appropriate and this needed to be dealt with before I took him out of school. She agreed and asked Boy Wonder to come back into the her classroom to talk about it. This was easier said than done and through what seemed like a sea of parents and children I had to practically carry him into the classroom. His teacher attempted to talk to him about the situation but he wasn't processing her long and complicated sentences ( although she was trying to be nice, she was being very wordy.) I let her finish and then spoke to him in shorter sentences and we managed to ascertain that a child had upset him so he became angry and kicked a girl on the leg. The girl hasn't upset him but was the closest person to him at the time. We went through the motions of telling him that it wasn't appropriate and what he should go instead but it was clear that he was struggling and was trying to remove himself from the situation by hiding behind me.

We left the school and no sooner had we got out of the gate Boy Wonder pushed Cat Girl, she pushed him back so he pushed her harder. I herded them into the car but Boy Wonder started to climb into the boot and then over the seats. I settled him down and we put on Starlight Express for him to sing and calm down to. He demanded that Cat Girl didn't sing or make a noise. She of course wasn't happy about this and started to get upset. I reassured her and she started to settle. I explained to Boy Wonder that he could sing but if Cat Girl wanted to sing that was okay too. Within a couple of minutes Cat Girl who had gone quiet suddenly started to cry loudly. I asked her what the matter was but she was too upset to answer. I asked Boy Wonder what had happened and he said calmly that he had hit her over the head with a lump of plastic.  I asked him why he had done this and he became aggressive saying that he had to shut her up, I pulled over in a car park and checked Cat Girl over. There was no mark but she was clearly upset. I moved her into the front seat and then spoke to Boy Wonder who was very fidgety and clearly distressed. I explained to him that he was making the car an unsafe place to be and that at the moment I couldn't carry on driving whilst he was being so aggressive. Boy Wonder said that be needed to go home as if he went to Jiu Jitsu he would hurt some people. He appeared very calm when talking and explained categorically that he was telling me what he would do to hurt others. I told him that I am worried that he will hurt himself or someone else and he agreed. He also said that he couldn't control his anger.

I got out of the car and stood outside of it and  spoke to Superman over the phone and we agreed that I would take him to Jiu Jitsu and explain what had happened and give him the opportunity to thrash it out positively. I got back in the car and explained to Boy Wonder that we were going to  Jiu Jitsu and to allow him to get rid of some energy positively. He didn't seem to react too much to this so I asked him what else had upset him. After a bit of a difficult start he started to tell me that he had fallen out with two friends today, his routine had changed due to an RE day and he wanted his Mine Craft book.

We arrived at Jiu Jitsu and spoke to the Sensi who said that he was happy to work through Boy Wonder's anger with him. When Super Man picked him up later on he appeared happier. Sensi explained that they had had a chat and them went into the session. Boy Wonder had then started to settle. Boy Wonder came home and although appeared calmer was clearly bubbling under the surface. A long night I feel!


Monday, 11 November 2013

The next Messi!!

A typical school morning embraced us and sent us into a whirlwind of madness, all before 8.30! They were going down to the war memorial this morning so the hunt was on to find the poppies bought last  week. We got there eventually and headed off to school.

I spoke to Boy Wonder's teacher about keeping a hold of him whilst walking to the memorial as he is still quite high and erratic. She agreed to keep a close eye on him.

I received a phone call in the afternoon from Boy Wonder's art therapist who asked if we could change the time of his session as Boy Wonder had told him that it clashes with his schedule, in particular gymnastics! It made me smile that he would do this, it shows great initiative,

After football I picked Boy Wonder up and the coach spoke to me again about how talented Boy Wonder is on the field. He told me that it would be a shame to not let him train and that he would come on leaps and bounds. Apparently Boy Wonder has no fear on the pitch and boundless energy. He just goes for the ball and will tackle anyone to get it no matter what their size. I explained that, that was a perk of being autistic/ ADHD, no fear, no sense of danger and endless energy! We said that we would talk about him training but was concerned that the sessions would need to be structured otherwise Boy Wonder would struggle to cope.   We agreed up talk about it next week and take him for a trial.

We picked Cat Girl up and after nipping home to get changed, went swimming. Cat Girl did well again and seems to be enjoying it. Boy Wonder got his 200 metre badge which he was very pleased about.

We came home and watched the Junior Bake Off before bed. After this and speaking to Super Man about the intricate rules of football, Boy Wonder eventually settled down into bed.

Sunday, 10 November 2013

Compare, contrast ....

This morning we got up and Superman started to prepare for the bike ride as I got ready to take advantage of the sun shine and clean out the animals. Superman experienced a typical morning of hyper madness and couldn't wait to get out on his bike with Boy Wonder and chill him out!

Cat Girl and I spent the morning outside with the animals and the kittens joined us. It was funny to witness their first encounter with the chickens. There was only going to be one winner there and the kittens realised this, eventually!

We then went in to cook some dinners for the week which included a curry, Spanish chicken and a sausage pasta bake. Cat Girl chopped the mushrooms, her favourite job! After a visit from grandparents she went on to play with her Sylvanian family and ended up playing with this for most of the afternoon. She made up stories, dressed them for whatever they were doing and generally created an afternoon of entertainment for herself. This is a very unusual thing to happen in our house and it took a lot of effort to actually stand back and allow her to play. Boy Wonder has never done this and probably never will, no matter how we help him, no matter what toys he has.  Cat Girl was content and happy, again not a combination that Boy Wonder is familiar with.

Maybe we shouldn't compare our children after all they are all individuals regardless of labels. However the contrast was so remarkable that, well it had to be remarked upon !

Boy Wonder and Superman returned from their 10 mile bike ride. They were very sludged up so Boy Wonder promptly stripped off on the door mat ( no shame!) and went off to get a lengthily shower. He then watched his programmes on the Iplayer.

Boy Wonder and Superman went out again after dinner to get animal feed. I took the opportunity to do the ironing whilst Car Girl played.

This  evening we watched a programme on space whilst Boy Wonder settled down.