Sunday 16 November 2014

Catching up

Its been two long weeks since the return to school.  A mixture of upset, anxiety and sheer frustration seemed to be the order of the day (every day!) and little sign of anything improving.  After three days of crying and banging on windows and doors to try and get out once I had dropped him off in the mornings, Boy Wonder lost all motivation to go to school and on Thursday, point blank refused.  I attempted to coax him but my heart wasn't in it and so therefore we had a chill day at home and spoke no more about it.  Later in the afternoon Boy Wonder was visited by an audio technician who fitted him for some noise filtering ear plugs, these are to help him to cope with noisier environments. A few phone calls also took place throughout the day and basically concluded that Boy Wonder should take time out as he needs and steps should be taken to source a more suitable and equipped provision.  The Ed Psych stepped up his position and made in roads to securing the pathway for this and outlining the provision required for it to take place.  We made arrangements to have Boy Wonder cared for on the Friday but after an evening with the boy next door, he decided to go as he had been invited onto the special dinner table with him.  This day turned out like the others.

The weekend mainly consisted of football, dance and rehearsals.   Boy Wonder was less stressed and enjoyed his weekend, until it reached Sunday tea time and the anxiety rose in him and he became very vocal that he didn't want to go to school.  We spoke to him about looking at another school where one of his theatre friend's goes.  We described what it was like and the specialist areas for children with autism and for the first time Boy Wonder acknowledged the positives and said that he wanted to visit.

The second week was a little more settled, Boy Wonder's work station had been moved into the I.T room and provision was made to keep him in there full time and not attempt any integration into the classroom.  This had caused a fair few difficulties in the previous week.  On Wednesday evening during drama, Boy Wonder  went very pale and blinked continuously for at least thirty seconds.  The staff thought he had had a seizure so sat him out once his colour drained.  He recovered after a few minutes and remembered nothing of it except that he could feel an eyelash in his eye.  On Thursday he went to school and I informed them of the previous evening.  At 10.30am they rang to say that Boy Wonder had gone very pale and had diarrhoea.  We arranged for Grandparents to collect him,  thinking that it was anxiety related as opposed to the virus that was going around.    He spent the afternoon resting with no further symptoms, therefore he went to dance and football as normal.

And then it all got a bit messy.  In the middle of the night Boy Wonder was very sick indeed.  This carried on throughout Friday and knocked him off of his feet.  No further seizures noticed but he was possibly ill for the first time in a long time, albeit a virus that would pass in a couple of days.  The visit to the potential new school had to be postponed due to him being ill but I managed to have a meeting with his current teacher who said that she felt that Boy Wonder now needed more than they could give and supported the potential move.

Luckily everyone else escaped the virus except for me but by the end of the weekend we were all back to normal. Boy Wonder's ear plugs arrived on the Friday and he tried them out at rehearsals today.  They seemed to really help him cope with the noise levels.  Early days but we are hopeful that they will make a difference.



Sunday 2 November 2014

School Holidays

As is generally the case, Boy Wonder settled nicely into holiday mode and his mood lifted.  We intentionally kept the weekend low key with the usual football and dance on Saturday and staying at home on Sunday.   On Sunday afternoon I gave Boy Wonder the fresh cream chocolate cake recipe and he and Cat Girl made the cake from start to finish on their own with just a little help to put it n and take it out of the oven.  The cake was for Super Gran's birthday so they also made some mini fresh cream chocolate sponges for us.  They were very nice.

On Monday we went to the supermarket in the morning and brought a few bits plus a pumpkin to carve for Halloween.  Boy Wonder coped well as it was only a small supermarket and he got to talk to the British Legion chap selling poppies whilst I packed the shopping.  He and Cat Girl bought a poppy snap band each and Boy Wonder asked lots and lots of questions about the war, being in the army and death (of course.)  The man asked him if he would like to be in the forces and he said 'No, I am going to be a Marine Biologist and look after Dolphins.'  They then had a lengthily conversation about this.  Once home and shopping unpacked, we picked up the cake and headed off to Super Gran's for her birthday lunch. Boy Wonder helped to make lunch, mainly to distract him from bear hugging his sister and bouncing around.  They are now in their new house and he is still getting used to it.  A friend arrived unannounced to deliver a birthday present to Super Gran and this sent him into a mild panic. 'Who is he? Why is he here? Can't we have lunch now?' After reassurance and a firm hold hug he settled again.

The rest of the week Boy Wonder and Cat Girl went to the Ju Jitsu holiday club which wore them both out and Boy Wonder went to two adventure days and to Club Inspire. Cat Girl spent some time with Grandads having chill days.

Boy Wonder remained fairly settled throughout the week and on Friday they both went to Halloween parties and Trick or Treating.  Boy Wonder dressed up as a vampire and Cat Girl as a skeleton.  They both ended up with a bucket of sweets each that they promptly hid from me!

It was my birthday on Saturday and so both children were up early to give cuddles, cards and pressies.  These were a heart shaped locket with their photos inside and a photo frame from Cat Girl with her photo in it. I even got breakfast in bed which consisted of a  marmite on toast, a cupcake and and beaker of pop.  The remainder of the weekend consisted of football and dance for Boy Wonder as usual and Grandad took him to watch his team play football.  Super Gran and Biker Gramps babysat Saturday afternoon to Sunday morning as Superman had arranged to take me away overnight for my birthday and a meet up with some family.  

We had a lovely time away and the children enjoyed their time with  Super Gran and Biker Gramps.  Once home we spent the day around the house and had visits from family and friends to bring birthday cards.

As the day wore on Boy Wonder started to become tetchy and very vocal about not wanting to go to school.  We had a chat about it and although we are still non the wiser what was agreed after our meeting last Friday, attempted to reassure him that they were trying to help him.  Boy Wonder seemed just as convinced as we are that things will improve soon.  (which isn't very convinced!) but we agreed to give it a go and that I wouldn't be far away if he needed me.

A late and unsettled night ..........